What are Arachnoid Cysts?
Arachnoid cysts are cerebrospinal fluid-filled sacs that may develop between the surface of the brain and the cranial base or on the arachnoid membrane — one of the 3 membranes that cover the brain and the spinal cord. Most cases begin during infancy, however onset may be delayed until adolescence. Symptoms of an arachnoid cyst are related to the cyst size and location. Small cysts are usually asymptomatic and are discovered only incidentally. Large cysts may cause cranial deformation or macrocephaly (enlargement of the head), producing such symptoms as headaches, seizures, hydrocephalus (excessive accumulation of cerebrospinal fluid), increased intracranial pressure, developmental delay, and behavioral changes. Other symptoms may include hemiparesis (weakness or paralysis on one side of the body) and ataxia (lack of muscle control). Arachnoid cysts most often occur in males.
Is there any treatment?
Treatment for arachnoid cysts is symptomatic. When symptoms warrant, the surgical placement of a shunt may be required to decompress (remove pressure from) the cyst.
What is the prognosis?
Untreated, arachnoid cysts may cause permanent severe neurological damage due to the progressive expansion of the cyst(s)or hemorrhage (bleeding). With treatment most individuals with arachnoid cysts do well.
What research is being done?
The NINDS supports research on brain and nervous system disorders such as arachnoid cysts. The goal of this research is to increase scientific understanding of these disorders and to find ways to prevent and treat them.
Select this link to view a list of studies currently seeking patients.
National Organization for Rare Disorders (NORD)
P.O. Box 1968
(55 Kenosia Avenue)
Danbury, CT 06813-1968
orphan@rarediseases.org
http://www.rarediseases.org
Tel: 203-744-0100 Voice Mail 800-999-NORD (6673)
Fax: 203-798-2291