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What is Behcet's Disease?
Behcet’s disease is a rare, chronic inflammatory disorder. The cause of Behcet’s disease is unknown, although there have been reports of a virus found in some individuals with the disease. Behcet’s disease generally begins when individuals are in their 20s or 30s, although it can happen at any age. It tends to occur more often in men than in women. Symptoms of Behcet’s disease include recurrent ulcers in the mouth (resembling canker sores) and on the genitals, and eye inflammation. The disorder may also cause various types of skin lesions, arthritis, bowel inflammation, meningitis (inflammation of the membranes of the brain and spinal cord), and cranial nerve palsies. Behcet’s is a multi-system disease; it may involve all organs and affect the central nervous system, causing memory loss and impaired speech, balance, and movement.

The effects of the disease may include blindness, stroke, swelling of the spinal cord, and intestinal complications. The disease is common in Japan, Turkey and Israel, and less common in the United States.

Is there any treatment?
Treatment for Behcet’s disease is symptomatic and supportive. Medication may be prescribed to reduce inflammation and/or regulate the immune system. Immunosuppressive therapy may be considered.

What is the prognosis?
Behcet’s disease is a lifelong disorder that comes and goes. Permanent remission of symptoms has not been reported.

What research is being done?
The NINDS supports research on painful neurological disorders such as Behcet’s disease. This research is aimed at discovering the causes of these disorders and finding ways to treat, prevent, and, ultimately, cure them.

 

 

Select this link to view a list of studies currently seeking patients.
 

 

 Organizations

 

American Behcet's Disease Association
P.O. 19952
Amarillo, TX 79114
shrinkrap2@aol.com
http://www.behcets.com
Tel: 800-7-BEHCETS (723-4238)

 

 

 

National Eye Institute (NEI)
National Institutes of Health
Bldg. 31, Rm. 6A32
Bethesda, MD 20892-2510
2020@b31.nei.nih.gov
http://www.nei.nih.gov
Tel: 301-496-5248 Professionals 800-869-2020
 

 

National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS)
National Institutes of Health
Bldg. 31, Rm. 4C05
Bethesda, MD 20892-2350
NIAMSInfo@mail.nih.gov
http://www.nih.gov/niams
Tel: 301-496-8188 877-22-NIAMS (226-4267)
 

 

National Institute of Dental and Craniofacial Research (NIDCR)
National Institutes of Health
Bldg. 45, Rm. 4AS19
Bethesda, MD 20892-6400
nidrinfo@od31.nidr.nih.gov
http://www.nidr.nih.gov
Tel: 301-496-4261
 

 

National Organization for Rare Disorders (NORD)
P.O. Box 1968
(55 Kenosia Avenue)
Danbury, CT 06813-1968
orphan@rarediseases.org
http://www.rarediseases.org
Tel: 203-744-0100 Voice Mail 800-999-NORD (6673)
Fax: 203-798-2291

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